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Diabetes by Design
Alex Durussel-Baker was on a plane taxiing down a runway when she found out she had Type 1 diabetes. She had been increasingly tired and had lost a lot of weight without meaning to, so had gone to a...
View ArticleRebel Health on The Nocturnists
Today is the one-year anniversary of the publication of my book, Rebel Health. To celebrate, I am inviting you to listen to my favorite conversation about why I wrote it and what lessons we can all...
View ArticleDiscovery Diaries with Damon Davis
Damon Davis has a new podcast, Discovery Diaries, and I was honored be among his first guests. We got into a wide range of topics: the origins of my interest in patient-led innovation; artificial...
View ArticleWow! How? Patient Data Rights
Until relatively recently, people living with diabetes were shut out of conversations about improving the devices that keep them alive. Device manufacturers saw clinicians as their customers, not...
View ArticleTransforming research participation
Below is a letter I wrote in response to Tania Simoncelli’s article, “From Bedside to Bench and Back,” (Issues in Science and Technology, Summer 2023). Read all the responses here. Biomedical research...
View ArticleShould peer health community moderators get paid?
Evidence is piling up in favor of peer health communities. The question is: How do we sustain them for the long-term? Here are 3 studies (of many) about the benefits of peer-to-peer health advice: A...
View ArticleInventing the future
If you want to meet the future faster, go out to the edges of your field of vision. Find out what pioneers and rebels are doing and learn from them. Sometimes that means taking a virtual helicopter...
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Credible, useful, helpful, trustworthy
Inspired by a conversation with my FasterCures colleagues, I began looking into survey data related to trust and credibility, particularly: What entities and resources do people turn to when they need...
View Article“Human stories really are what drive us…”
The more we open access to the data, information, and tools people need to solve their own problems, the better. That’s the essential message of the research and consulting I’m engaged in these days,...
View ArticleBetter health, together
InquisitHealth is a company that truly understands that health is social. They are able to knit people and best practices together to create “better health, together.” What an inspiring story they...
View ArticleHalf of 18- to 22-year-olds seek peer health advice online
A 2018 national survey by Hopelab and Well Being Trust uncovered an astonishing finding: Fully half (51%) of 18- to 22-year-olds say they have tried to find people online with health concerns similar...
View ArticleBuilding the evidence base for peer health advice
Imagine an intervention that produces results like these: One-third of those living with chronic conditions are now more likely to take necessary medications. The risk of admission to a neonatal ICU...
View ArticleThe New York Times: “Sometimes Patients Simply Need Other Patients”
Aaron E. Carroll and Austin Frankt co-wrote an excellent article about peer-to-peer health care in The New York Times today. An excerpt: In an ideal world, when we are faced with a new health problem,...
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What I’m reading, listening to, admiring…
I hunkered down at the library this week, working on a couple of long-term projects. I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this...
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Imagining better outcomes for T1D with #MakeHealth
This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a...
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Secret questions, naked truths
My prepared remarks for the Quantified Self Public Health Symposium (here are some notes from the event): You know when you type the first few words of a query and Google suggests the rest based on...
View ArticleA field guide to The Diagnosis Difference
The Pew Research Center released a report today on people living with chronic conditions: The Diagnosis Difference. Policy makers, patient advocates, entrepreneurs, investors, clinicians — all health...
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Mobile, social, health, care
A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your...
View ArticleListening to patients at Medicine 2.0
I wrote a long post on e-patients.net about my one day at Medicine 2.0 on Saturday. Here are a few highlights — people who focused on listening to patients and caregivers: “To learn listen well to...
View ArticleISO: Randomized Trials–Susannah Fox
I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on...
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